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  • Vermont Voices of Childhood and Adult Illness
  • Our goals
  • Recordings
  • Full Recordings
  • How it works
  • More info
  • Who we are
  • Contact
  • Affiliations
  • Vermont Voices of Childhood and Adult Illness
  • Our goals
  • Recordings
  • Full Recordings
  • How it works
  • More info
  • Who we are
  • Contact
  • Affiliations
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      Vermont Voices of

      Childhood and

      Adult Illness

       

      Patients and their families share and record conversations in the style of NPR’s StoryCorps

    • Our goals

      To record your story and preserve a memory

      To share stories from family to family

      To understand the ways chronic illnesses impact our lives

    • Recordings

      Excerpts from some of our conversations

      Candis and Hayden

      Back from the brink

      Hayden describes how he felt when his mom Candis received treatment that turned around her disease course. Candis was just grateful to attend her son's high school graduation.

      Carrie and Addison

      Mother and Son Team

      These two have helped each other immensely through Carrie's cancer treatments. The full recording of their conversation is available in the SoundCloud player below.

      High School Reunion

      There are times when we try to disguise our illness and hope that nobody notices, but Carrie experienced an outpouring of love by embracing her baldness with a conspicuous wig.

      "The Most Important Thing Is: You Need to Be a Kid"

      Carrie speaks about Addison's high-functioning autism, his gifts as a reader and inquisitive scientist. At the time of her diagnosis, 12-year-old Addison took on many of the responsibilities of caretaker. He speaks now about the challenges of disruption to their routine.

      Poetry and GIving Back

      Carrie reads her poem "No" about receiving chemotherapy and "Grace" about her philosophy. Giving back to others helps her through treatments.

      Andrew and Amanda

      Like any five year-old, Andrew just wants to play and have fun. Sure, he has faced some serious health challenges, but that doesn't mean he takes himself too seriously. He is too busy to be sick. We sat down with Andrew and his mother at the UVM Medical Center pediatric inpatient ward to find out what makes him tick.

      Kathie and Ron

      What People Can Do Or say to help

      Kathie and Ron are partners who were diagnosed with lung cancer within six months of each other. We sat down at the Hope Lodge in Burlington to have a conversation about family, dog ownership, and taking care of one another.

      "We were robbed"

      Words of Wisdom

      A Lifelong Vermonter

      Take Care of Yourself So you Can Take Care of Others

      This Vermont resident has been taking care of her husband with kidney cancer for nearly ten years. She has seen it all and has some valuable thoughts to share.

      WE aren't MIND-READERS

      Everyone wants to help; no need to be stoic. Just say the word.

      Karen

      My Older brother george

      Karen's brother lived with paranoid schizophrenia in the Vermont State Hospital.  Karen's full recording is available in the SoundCloud player below.

      Loan sharks

      Karen remembers her father who disappeared from her life. She was able to piece together only some of his history after he died.

      Death with Dignity

      It means having a physician who understands, being comfortable and clean, and dying on my own terms.

    • Full Recordings

    • We come to you to record your story

      We will bring audio recording equipment and facilitate the conversation

      You will partner with a family member, friend, or other important person in your life

       

      Sit down with someone you know well

      Have a meaningful conversation

      Ask questions you might not otherwise feel comfortable asking

       

      Audio record a memory for your family to keep

      or

      Help another family by sharing your experience

    • More information and links

      StoryCorps Website - a collection of exemplary stories

      UVM Medical Center StoryCorps - local stories from our own hospital

      Vermont Folklife Center's Unexpected Journeys: Life, Illness and Loss - a photography exhibit

       

      Interview Format and Tips - helpful ideas and approaches to your story

      Some great questions to get the ball rolling - feel free to come up with your own too!

      Media Consent Form UVM Medical Center

    • Who we are

      Jacob B. Reibel

      UVM Medical Student

      2016-17 Schweitzer Fellow

      English teacher, Cancer researcher, Francophone, Singer, Photographer, Outdoor enthusiast

    • Contact

      Email: jacob.reibel@med.uvm.edu

    • Affiliations

      UVM College of Medicine

      Burlington, Vermont

      The University of Vermont Medical Center

      UVM Medical Center

      Burlington, Vermont

      The Albert Schweitzer Fellowship: Improving Health | Developing Leaders | Creating Change

      The Albert Schweitzer Fellowship

      preparing the next generation of professionals who will serve and empower vulnerable people to live healthier lives and create healthier communities

      Since its founding in 1940, The Albert Schweitzer Fellowship (ASF) has grown far beyond our original focus on supporting the Schweitzer Hospital in Lambaréné, Gabon, Africa. Over the years our mission evolved. Today, through the work of the Schweitzer Fellows, ASF extends our influence on community and clinical health in the United States and across the globe, thereby perpetuating the legacy and philosophy of famed physician-humanitarian Dr. Albert Schweitzer.

    © 2017

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