Vermont Voices
of Serious Illness
Patients and their families share and record conversations in the style of NPR’s StoryCorps
Our goals
To record your story and preserve a memory
To share stories from family to family
To understand the ways chronic illnesses impact our lives
Recordings
Excerpts from some of our conversations
Candis and Hayden
Back from the brink
Hayden describes how he felt when his mom Candis received treatment that turned around her disease course. Candis was just grateful to attend her son's high school graduation.
Carrie and Addison
Mother and Son Team
These two have helped each other immensely through Carrie's cancer treatments. The full recording of their conversation is available in the SoundCloud player below.
High School Reunion
There are times when we try to disguise our illness and hope that nobody notices, but Carrie experienced an outpouring of love by embracing her baldness with a conspicuous wig.
"The Most Important Thing Is: You Need to Be a Kid"
Carrie speaks about Addison's high-functioning autism, his gifts as a reader and inquisitive scientist. At the time of her diagnosis, 12-year-old Addison took on many of the responsibilities of caretaker. He speaks now about the challenges of disruption to their routine.
Poetry and GIving Back
Carrie reads her poem "No" about receiving chemotherapy and "Grace" about her philosophy. Giving back to others helps her through treatments.
Andrew and Amanda
Like any five year-old, Andrew just wants to play and have fun. Sure, he has faced some serious health challenges, but that doesn't mean he takes himself too seriously. He is too busy to be sick. We sat down with Andrew and his mother at the UVM Medical Center pediatric inpatient ward to find out what makes him tick.
Kathie and Ron
What People Can Do Or say to help
Kathie and Ron are partners who were diagnosed with lung cancer within six months of each other. We sat down at the Hope Lodge in Burlington to have a conversation about family, dog ownership, and taking care of one another.
"We were robbed"
Words of Wisdom
A Lifelong Vermonter
Take Care of Yourself So you Can Take Care of Others
This Vermont resident has been taking care of her husband with kidney cancer for nearly ten years. She has seen it all and has some valuable thoughts to share.
WE aren't MIND-READERS
Everyone wants to help; no need to be stoic. Just say the word.
Karen
My Older brother george
Karen's brother lived with paranoid schizophrenia in the Vermont State Hospital. Karen's full recording is available in the SoundCloud player below.
Loan sharks
Karen remembers her father who disappeared from her life. She was able to piece together only some of his history after he died.
Death with Dignity
It means having a physician who understands, being comfortable and clean, and dying on my own terms.
Full Recordings
We come to you to record your story
We will bring audio recording equipment and facilitate the conversation
You will partner with a family member, friend, or other important person in your life
Sit down with someone you know well
Have a meaningful conversation
Ask questions you might not otherwise feel comfortable asking
Audio record a memory for your family to keep
or
Help another family by sharing your experience
More information and links
StoryCorps Website - a collection of exemplary stories
UVM Medical Center StoryCorps - local stories from our own hospital
Vermont Folklife Center's Unexpected Journeys: Life, Illness and Loss - a photography exhibit
Interview Format and Tips - helpful ideas and approaches to your story
Some great questions to get the ball rolling - feel free to come up with your own too!
Who we are
Jacob B. Reibel
UVM Medical Student
2016-17 Schweitzer Fellow
English teacher, Cancer researcher, Francophone, Singer, Photographer, Outdoor enthusiast
Affiliations
The Albert Schweitzer Fellowship
preparing the next generation of professionals who will serve and empower vulnerable people to live healthier lives and create healthier communities
Since its founding in 1940, The Albert Schweitzer Fellowship (ASF) has grown far beyond our original focus on supporting the Schweitzer Hospital in Lambaréné, Gabon, Africa. Over the years our mission evolved. Today, through the work of the Schweitzer Fellows, ASF extends our influence on community and clinical health in the United States and across the globe, thereby perpetuating the legacy and philosophy of famed physician-humanitarian Dr. Albert Schweitzer.
© 2017